Home Nephro Research Plea to test babies for kidney disease at five days old, urge young family

Plea to test babies for kidney disease at five days old, urge young family

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Plea to test babies for kidney disease at five days old, urge young family

His mum Carrie, 24, and her partner Lee Newell, 23, are delighted with this fundraising total and say they have finally come to terms with the shock diagnosis of their son, a stage four kidney warrior, having spent most of his first five months in hospital.  

However, they admit they did not cope well in the beginning.  

Carrie, a nursery manager, said: “It was one the scariest moment of our lives when we were told he had kidney disease.  

“We had no idea if he would survive. We thought kidney disease was something suffered by older people, it was terrifying. 

“It is only with hindsight I look at my pregnancy scans and see the hydronephrosis – swollen bladder and kidneys – I’d enjoyed a healthy pregnancy so we had no idea anything was wrong. Had we been prepared it would have certainly helped.  

Within days of being born, Roman’s kidneys swelled so much that his left kidney collapsed. Doctors at Burton stabilised him and he was transferred to Birmingham Children’s Hospital.

“He had surgery as they thought it was a valve blocking the urine, but they didn’t find the valves they expected, he had to have further tests on his nerves, spine and bladder to see how much fluid needed draining. 

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